Showing posts with label ABS. Show all posts
Showing posts with label ABS. Show all posts

Wednesday, 11 November 2020

A Year From Abigail's Anencephaly Diagnosis

Here, in pictures, is my path on campus to my one in-person class.
I'm thankful today for professors, guidance counselors, and teaching assistants whose personal interest in my success has buoyed me up through what has been the most difficult year of my life. 
November 8 marks a year from the day we received the fatal prognosis of our first daughter's anencephaly. đŸ’”
I still remember going to class the next time after and staying after class to tell my neurobiology professor about the anencephaly diagnosis. She hugged me and gave me the best comfort she could have given me about the reality of my daughter's spirit despite this birth defect.
Since then I have received nothing but support from every teacher. It hasn't always meant a good grade in the class or an easy time. It hasn't meant that at all. 
But it has meant shared humanity and kindness and shared growth. I'm grateful for that. đŸ¦‹đŸ¦‰đŸŒ»đŸŒ·☀️

Sunday, 28 June 2020

A Difficult Question

Question Mark, Question, Response, Search Engine
Source: https://pixabay.com/illustrations/question-mark-question-response-1019820/

I was talking to someone while I was at Simulations Week and they asked me how many siblings I had. That was a very hard question to answer at the time. Did that include siblings in heaven? I almost wanted to reply that I had four siblings, because that was my usual answer. But now it was different, because of the birth and passing of Abby.

Luckily, families can be together forever. In fact, Families Can Be Together Forever is like Abigail's theme song. We sang it to her when she was born as shown here:

I had been asking God for quite a while for a sister. That is exactly what I got last February, just not in the way I thought. I expected a sister that would live on earth for a long time, but that wasn't quite the case. Abigail is even more special than I had imagined. An angel sibling is still a sibling.

So obviously, this question was not as difficult as I thought it was at the time. I have five siblings. Layne, Ben, Daniel, Corbin, Abigail, and any other siblings that may be waiting in heaven to come to live on the earth.

And I want to share my life with them through all eternity.

Sunday, 21 June 2020

The Dream About the Well

Journal, Write, Blank, Pages, Notes, Notebook, Diary
Soure: https://pixabay.com/photos/journal-write-blank-pages-notes-2850091/

Happy Father's Day!

A couple of days ago I remembered a dream that I had in August 2017. I went searching for it in my journal today and found it. Here is what it said:

...I had a dream that we were at a pool and were having so much fun! But most of the time, I was underwater [and] not breathing! Mom and Dad were having so much fun that  Corbin climbed into a well [because he wasn't being watched]. He fell down and drowned. I felt so sad. Before I could tell Mom and Dad, I saw a magician. He looked very poor. He had a cape and claimed that he could do everything. I asked him if he could make my brother alive again. The magician agreed. He pointed his wand to the well. The well was at the pool, so the water went down and came back up on the sides and fell down again. There was no pail. When the magician pointed his wand at the well, Corbin stood up and climbed up the well. and I was amazed! Corbin was alive again!
The moral? All's well that ends well!

All joking aside. I understand now that this dream wasn't about Corbin, though it was at the time. Now it's about Abigail. She fell into a well, metaphorically speaking. My whole family was sad and wished that she could have stayed longer

But her Heavenly Father, the greatest magician of all, recieved her into his glory. Abigail is not dead, and when we see her in heaven someday, we will be amazed and happy.

And we will realize that death is only a part of life.

Wishing Well, Well, Old, Wood, Wooden, Garden, Green
Source:https://pixabay.com/photos/wishing-well-well-old-wood-wooden-76869/

Sunday, 24 May 2020

Abigail's 3-Month Birthday

Babe, Smile, Newborn, Small Child, Boy, Person, Smiles
Source: https://pixabay.com/photos/babe-smile-newborn-small-child-boy-2972221/

Tommorow, Abigail will have been 3 months old. She would be chubby and nap a lot. She would be able to respond to sounds, and make them as well. She would begin to smile a lot and start learning how to roll around on her blanket. I would hold her every time I got the chance and look into her beautiful face.

Today I asked my family how they are going to celebrate Abigail's 3-month birthday (Daniel and Ben couldn't do it because they are at their grandparents house).

Here is the video:

And me? I'm going (try) to sketch a picture of Abigail and put it on one of my mirrors so that I can see it every day when I wake up.

Happy Birthday, Abigail!

Sunday, 17 May 2020

Abigail's Messengers in Heaven

Angel, Angel Figure, Sculpture, Statue, Wing
Source: https://pixabay.com/photos/angel-angel-figure-sculpture-statue-3740393/

"Please bless that the messengers in heaven will surround Abigail."

This sentence is said almost every time Daniel gets the chance to say a family prayer. Three questions always come to my mind whenever I hear this. 
  1. Who are the messengers surrounding Abigail?
  2. What are they delivering?
  3. Why are messengers surrounding Abigail?
Here is an interview I had with Daniel asking him these questions:

Sam: Who are the messengers surrounding Abigail?
Daniel: Joseph Smith and Hank Smith and.... Jesus.

Sam: What are those people delivering?
Daniel: They are delivering words!
Sam: They're delivering word? What kind of words?
Daniel: Thou shalt not hurt.
Sam: So they deliver commandments?
Daniel: Uh-huh. Thou shalt not steal.

Sam: Why are the messengers surrounding Abigail?
Daniel: They're full of love.

In the first question, Daniel said three peoples' names: Joseph Smith, Hank Smith, and Jesus. Why would he talk about people who lived in completely different times? I think that Daniel was making a point. Those people are/were great people! Abigail is surrounded by angels, not demons.

I like what Daniel said about angels delivering commandments. I was hoping that Abigail would strengthen our family. We use her as a good example all the time!

The angels and the godhead love Abigail. They love her very much.

And so does her family.

Sunday, 10 May 2020

Happy Mother's Day!


Happy Mother's Day! We went to visit Abigail's grave today. We are hoping that the grass over Abigail will grow green soon. My mom cut a tulip out of Abigail's garden to put it in the vase on her grave. I joked that this was because Abigail had only one lip.

I really apreciate how much my mom cares and loves her children, even though we are sometimes hard to handle (or always hard to handle). My mom wanted to visit Abigail and show her love for Mother's day, so that is what we did.

Happy Mother's Day, Mom!

Sunday, 26 April 2020

Abigail Angelo est (Abigail is an Angel)

Love, Romance, Nature, Desktop, Angel, Baby, Heart
Source: https://pixabay.com/photos/love-romance-nature-desktop-angel-3020862/

Deus est Bonus. Deus in caelo est. Dues angelos creat. Angeli sunt in caelo. Angeli Deum amant. Angeli cantant. Estne caelum bellum? Caelum est bellum.

What language are these words in and what the heck do they mean? Don't even try to ask Google Translate. I can asure you that it won't be acurate at all. In fact, it will be hilariously wrong.

So what do these words mean? I'll tell you eventually.

Abigail is an angel. No doubt about that. What exactly is an angel though? An angel is one of God's living creations that don't have a physical body.

This is the dictionary definition.

"a spiritual being believed to act as an attendant, agent, or messenger of God, conventionally represented in human form with wings and a long robe."

So Abigail must have been a messenger, right? I'm not sure about the wings and robe but the rest of it is pretty acurrate. There is more:

"a person of exemplary conduct or virtue."

Was Abigail virtuous? Is she virtuous? Does she have high morals? It's hard to tell since she didn't have long to live on this earth. She didn't do anything wrong, so she is not sinful. I don't want to say that she didn't do anything right because that would be far from true.

She brought love from heaven. She is a messenger of God and from God.

That first paragraph was in Latin. Here is the translation:

God is Good. He is in heaven. He creates angels. The angels are in heaven. They love God. The angels sing. Is heaven beautiful? It is beautiful.

Yes, heaven is beautiful. And so is Abigail.

Sunday, 19 April 2020

Salt and Pepper

Sparky Mama, Binky, and Sparky

We got three chicks yesterday. We are getting 8 more soon to make 11. If you were one of my siblings the day we got them, you would see how protective I am of them. I still am that way a day later because I don't like it when someone picks up a chick by their wing or drops one from too high up.

This is because I've had chicks before.

The first chick that died in one of our homes was named Salt and Pepper. He was a gray ball of fluff with little black and white specks covering his body. He never did anything wrong and was the smallest out of all the chicks we had. Guess how he died? Pasty butt.

Pasty butt is when the chick's rear is covered in waste, preventing it from going to the bathroom. The waste builds up until the chick passes away. To prevent this, someone must wipe the baby chicken's rump clean of the waste with a warm, wet, paper towel.

Salt and Pepper never did anything wrong. But his owners didn't know there was a problem so, sadly, he had to go. It brings me comfort to know that Salt and Pepper is smiling down from the clouds, watching to see how carefully I take care of his kind.

He wasn't just a piece of meat and neither are any chicks. They are all creations of God that He loves very much. Abigail is one of his loved creations as well. She never did anything wrong, but she had to return to her Heavenly Father, just like Salt and Pepper.

And I think they are great friends.

Dedicated to all of the chicks who have passed away in our home.

Sunday, 12 April 2020

Nature and Abigail

Chicks, Easter Chick, Easter, Yellow, Fluffy, Cute

Today my family and I went on a little walk around the block and were trying to notice nature all around us. What helped me focus on that was taking out my camera and recording animals, plants, and trees. I was grateful for the nature that God has given to everyone on earth and it made me wonder how heaven looks. 

Every living thing will be in heaven, including the plants and trees. Nature will be everywhere. The only difference between heaven and earth will be that heaven will look like Spring all of the time. The scriptures clearly tell us "...not a hair on your head will be lost" (Luke 21:18) and so will it be with the plants, trees, and animals. Not a leaf, branch, hair, feather, nor piece of fur be lost.

But how does this relate to Abigail?

Abigail's body was like all of ours. Imperfect. Jesus Christ's body was imperfect as well, but his spirit was completely perfect. So is Abigail's. I know Abigail is beautiful because all of the love she brought me.

We visited Abigail's grave after the walk and my mom told everyone to tell Abigail what we would give her when she is resurrected. Of course my mom stole the best one: "I will give you a hug and cry" so when it was my turn I responded, "What she said". 

I'm not just going to give her a hug, I'm going to give her a really big, brotherly, bear hug. When I cry, I'm going to cry a lot. And they won't be sad tears.

They will be joyful ones.

Sunday, 5 April 2020

Thoughts About Abigail

I have not written in a while because I wasn't sure what I would say after Abigail left. I have different feelings everyday, but I always find myself in deep thought whenever someone says her name.

Baby, Hand, Infant, Child, Father, Parents, Sweet

Abigail's name means "gives joy" and is very, very accurate because of the angel she is. In Hebrew, it means "my father's joy" and though I'm not her father, she is my joy as well. In fact, she is her brother's joy. According to Wikipedia, Abigail is "an itelligent, beautiful, loyal woman" which I am sure she would have been if she had lived longer on this earth. It brings me peace to know that that is exactly how she is described in heaven right now.

You would almost think that Abigail would have been able to stay on this earth and that she would be completely fine. It would seem that the two cleft pallets would soon heal and there would only be two identical scars on either side of her face that would hardly be visible. Maybe her brain would finally fully develop and the placenta would be able to be carefully removed from it. She would grow up just like any other child except for her undersized feet and fingers.

But this was not to be. She would return home to her Heavenly Father in 22 and a half hours, letting every one of her siblings hold her before she had to do so. Abigail would leave her oldest brother in tears once he held her. He is now very thankful that someone had donated blankets and that he had one to cry into. He has promised that he would never wash the tears out.

If I had to use one word to describe Abigail, it would be love and--if you gave me another one--I would choose joy. Not just because that's what her name is, but because that is what she is. She is my hope, she is my heart, she is my joy.

And I am glad that she's mine.

Wednesday, 1 April 2020

Collateral Beauty and Getting Old is a Gift


Abigail is a gift.

She came like a shooting star, passing through the night sky of our lives, then vanishing from our view. But her beauty and the majesty of her mission stay forever in our minds.

During America's stay-at-home order for the Covid-19 Coronavirus pandemic, which some people have suggested should be known as The Great Pause, many have pondered aloud about the blessings of Coronavirus. Obviously, pandemics are frightening. We worry for ourselves and our loved ones and we feel protective, isolated, and uncertain as we take steps to "flatten the curve" and mitigate the disaster suggested in the word "pandemic." However, many people have seen beauty in the sudden pause, the forced rest, the togetherness of families, the spontaneous and planned acts of charity, the productive and compassionate use of technology to connect and bring hope. It's all beautiful when you look at it that way.

How we look at things makes a big difference in the message we receive from it.

Shortly after getting out of the hospital, Bill and I watched Jumanji II again. It was a movie we had watched twice in the theatre while I was pregnant with Abigail. The timing of the comedian/actors was impeccable and I found myself laughing through the movie both times. We bought it as soon as it came out digitally so we could watch it at home.

This time as I watched it, I tried to remember how much I had enjoyed it before, and how Abigail had kicked up a storm in my womb as I laughed and laughed. There were sweet moments in the movie, too--lessons for the characters to learn and express. Self-appreciation, the importance of leaning on your friends in your vulnerability, and forgiveness.

When I first got home from the hospital, I was relieved to be home and not in a hospital. I was happy to have access to my other children again, to comfort them and enjoy their personalities. And I was driven toward the work that had to be done for Abigail's funeral. Many of the arrangements had already been planned and prepared beforehand. The casket had been made. The funeral gown had been purchased. The burial plot was ready and waiting, and I had written my love note eulogy while still in the hospital. But there were still things to do. I focused on helping Bill to gather his thoughts for what he wanted to say, encouraging our sons to practice the song they were to sing at the funeral: "Families Can Be Together Forever." I focused on welcoming family who came from out of town to help us honor Abigail. All of this felt natural and precious and time slowed down for it.


But after the funeral, I felt physically and emotionally exhausted. It was finally time to feel the backward motion of what can best be described as emotional whiplash. Had it really happened at all? Had Abigail been born, spent her whole life on earth in one day, and gone on to heaven? Had we buried her already? All in less than one week? My head and my heart spun with the surreal speed with which the entire thing had taken place. Time is a luxury we take for granted.

Now that Abigail was gone, I didn't want time. It seemed to stretch out in front of me for miles with no rest stops, an unending march toward my own death so far in the distance. I just wanted to crawl into that hole with Abigail and be buried, too. The fact that I had died, that my heart had stopped, actually gave me a worse case of survivor's guilt. Why was this sweet spirit gone and my crotchety old self still here? I'm 36 years old, but I feel ancient. Life has been incredibly long and more painful than I ever could have imagined before living it. I felt tired. I prayed and prayed and prayed for God to help me to feel like living again. He sent me little messages, in the form of a special card written by a friend or the words to a song, the embrace of a child, the face of my husband.

I could barely pay attention to the movie as we sat on our bed watching Jumanji II. My heart was broken and my will felt so weak. I related less to Danny Glover's cheerful, smiling character who always saw the silver lining and more to Danny DeVito's grouchy old man. His character had just undergone hip surgery and all he would say to anyone who would listen was how much getting old stank. Never get old, he advised his grandson, the main character of the film who was going through his own existential crisis.

Yeah, I thought darkly. Never get old.

But that moment of resonance was only leading me inevitably to the moment at the end of the movie when his character arc would be complete, and when he would say the line that struck me to the core.

As he's playing a video game with his grandson, he starts the familiar phrase he's been saying through the whole movie. "Growing old..."

"Yeah, yeah, I know," his grandson interrupts. "Growing old sucks."

But no, that's not how he was going to end it this time. "Growing old," he says instead, "is a gift." Cue the twinkle in his eye. My spirit felt like a live wire inside me, and I knew God was watching me watch this movie and putting that scene in my path so I would experience this moment.

I knew it was wisdom. And I knew, of course, that life was a gift from our Heavenly Parents to us. It just didn't feel like one anymore. Abigail's life had been a gift. I hung onto that fact, and I added to it the message I had felt resonate in my bones: my life is a gift. Living right now is a gift.

Since then, I have continued to receive these little messages all around me, because I've been looking for them. My search for meaning intensified the day we received Abigail's original diagnosis of anencephaly on November 8, 2019. After her death on February 26, 2020, this search goes on. I am especially looking forward to the April General Conference of The Church of Jesus Christ of Latter-day Saints this weekend because the words of living prophets are a bounty of little messages when you're open to receiving them.

Today, I tell people I am doing pretty well. I cry and I struggle against thoughts of worthiness and worthwhileness. I try to get back that surety that I have felt at various times in my life, the surety that allowed me to walk through the fire with Abigail in the first place. And I watch for messages from the Lord. I need them now more than ever before in my life. I need them just to get out of bed in the morning. They continue to come through my children's hugs and tears, through my husband's words and glances, through scripture, in movies and music and books, through friends and flowers, even a cloudy sky.

We are all walking forward.

Shortly after I came home from the hospital, I moved Abigail's bassinet into my bedroom, right by my side of the bed, under the window. It's where I would have put it if she had lived and we had brought her home. It's where I needed it now, even though she wasn't here anymore. I filled it with a box of 4x6 photos, mostly black and white, of Abigail's feet and hands and my children holding her, and Bill walking through the hospital with her like her sentinel in his Batman shirt.


And I filled it with baby blankets, all the ones she used in her hospital stay and the big one that had covered her throughout the night, the one my mom had crocheted just for her. On the top of the pile I put the preemie sleeper outfit that she had worn throughout that special day of being alive with us. It was a turquoise blue and said "Little Sister" in pink letters. It rested now, lifeless, on top of a swaddling blanket still stained, despite washing, from the piece of the placenta that had been her crown and constant companion in this life.


For the first week, I stopped by the bassinet before getting back in bed, and lifted the tiny outfit and blanket to my face. I tried to inhale whatever of her essence remained in the weave of the fabric. Until one day I lifted it and couldn't smell her anymore. I still looked at it, and held the big crocheted blanket my mom had made. It was almost as big as Abigail, all folded up on itself, and I held it to my chest as if it were her.



After we planted her cherry tree, I looked out the window as I held the blanket and imagined the cherry tree in full bloom with all its temporary seasonal glory.

When my kids came to visit me in my room during my recovery, they sidled past the bassinet and tried not to bump it too much because they knew that would upset me. We had family prayers around our bed, seven people crowded around on their knees with their arms folded as we prayed together each night before bed. The bassinet made it quite crowded on my side.

I knew I couldn't keep the bassinet there forever, but I wanted her blankets and her little owl where I could reach them when I needed them. Thankfully, one night I had a stroke of inspiration. That happens often when you stay up an extra hour lying in bed without distractions. I planned it all out in my mind, and then this bench became the solution.


Before we moved, it was put outside while we tiled most of the floors in our old house. When I asked the boys to keep busy painting the table and chairs white, someone painted this bench, too. It looked like a child had painted it. When we moved the furniture into the new house, there was no place for this window seat. The new kitchen had no outside wall and no window for a window seat. I put it outside by the grill and forgot about it. The other day I pulled out the cordless sander and did my best to add to its character, bring out some of that pretty burgundy red. My body is still very sore, so I only managed to give it a little more character, but I'm happy with my efforts. The bassinet is gone. All the blankets are in this storage bench, and the owl sits on top.


This will be a good place to sit and watch the cherry tree in bloom.

I sent the picture of the bench to my mom and sisters. My mom said, "You're not forgetting, just moving forward." That is right.

*sigh*

This is hard but necessary.

Abigail has been gone a month. I don't think I will ever get over it. But I am getting through it. We all are.

Last week, Bill and I pulled out another favorite movie, Collateral Beauty. I had been afraid to watch it because Will Smith's main character is a man who recently lost his six-year-old daughter to a rare disease.


It hits so close to home, but I needed to watch it again. His journey to acceptance involves writing letters to the three abstractions: Time, Love, and Death. So many of the things he writes to them are poetic versions of my own grief-stricken thoughts. In the case of this film, the title is the lesson, but the audience goes on the same journey as the main character to accept it--because at first it sounds like fluffy nonsense. The stages of grief do not often brook fluffy nonsense. We have to go through all of the main character's conversations with Time, Love, Death, and his ex-wife, before we can believe that there is any such thing as collateral beauty.

"It's there," the ex-wife promises him. And it really is. Bill and I have seen it, felt it, practically swam in it at times.

God is good all the time. There is a Divine Order, as Jeff Olsen says in his book, Knowing. Everything is in Divine Order, though it doesn't often feel that way to us. A simple search of chaos theory on the internet tells us how much we don't know about the way nature functions. What looks like chaos is actually order, and it is designed.

Whatever you're going through, I hope this can be one of your messages for the moment you need it. You are known and loved, cherished even. The way we cherish Abigail times infinity.

God not only loves us each profoundly, but there is a plan for our ultimate happiness. It can't be seen in intricate detail because the future is to be lived moment by moment. So I try to be content with my little messages: the glass butterfly I found in Abigail's garden (or did it find me?); the March snowfall that covered everything in a silent, serene white veil; the pandemic that halted the world for my grief.

There is definitely such a thing as collateral beauty. It's the part that makes life a gift worth living.

Thursday, 5 March 2020

What Was Beautiful About Abigail

The moment I saw Abigail, I was in awe of her. I had been prepared for a baby with no face, so to find this baby on my chest who was so developed was a big surprise. It was reminiscent of some of my dreams in which someone was handing me a perfect baby while I lay in a bed. In those dreams I was always confused because we had been expecting the worst. 

In the video of that moment, where Bill is handing me our daughter for the first time and introducing us, you can't hear much of what we are saying. There is too much doctory noise in the ICU. But you can see in my face the wonder I feel, and you can read my lips when I say, "Wow."

What was so beautiful about Abigail was the life force that could be felt from her, the spirit. She was so clearly alive, despite her limitations which made her appear mostly unresponsive to her environment. She had reflexes but was mostly still and slept for much of her life, like a healthy newborn does anyway. Her presence is one I will never forget, though. Maybe other mothers and fathers will know what I mean when I say she had a quiet wisdom about her.

Wise babies, fresh from heaven, so filled with purpose. They are all amazing, aren't they? Abigail had that, too.

What was so beautiful about Abigail was the way she relaxed at the soft touch of love on her chubby cheeks. I could have stroked them forever, singing lullabies and watching her soak in the love.

What was so beautiful about Abigail was the softness of her cry and the wetness of her tears. I had no guarantees of hearing her voice, and the expectation was that she had no eyes. Yet we had the privilege of knowing her voice and her tears. It broke our hearts to know she was struggling near the end of her life. But wiping her tears and comforting her with our voices was part of that deep connection we formed with her during her tiny, brief life on earth.

What was so beautiful about Abigail was the way neither her hands not her feet were matching. Each limb ended with a different kind of hand or foot. The left hand and the right foot were visibly perfect, with a little kissie toe action (syndactyly) on the right big and second toe. But the left foot was clubbed and tiny, due to the amniotic band restricting blood flow, and we called that one her baby doll foot. It still had all its parts with five precious little toes. They were merely smaller and less standard in their appearance. Her right hand was also affected by the amniotic bands so that her pinky on that hand was a third of the size it would have been. Yet there was still a tiny triangular fingernail at its tip. It was my favorite hand. She closed her hands around our fingers when we touched her. Holding hands with my baby girl was another very special way we bonded.

What was so beautiful about Abigail were her perfect little ear lobes. They were so cute and perfectly formed. It was only above her ears that the skull had stopped forming. We loved singing and speaking softly into those precious little ears.

What was so beautiful about Abigail was the round little chin that looked so much like the rest of the Lantz chins. The beginnings of a chin dimple were there, just as all our other children had at birth. It was part of the joy we experienced on the day of her birth for everyone who held her to pick out these little family resemblances.

What was so beautiful about Abigail was the steadiness of her heart and how she fought to the end. Dreams had prepared me for this, but not enough. When her heart stopped beating against my chest and her breaths had been quiet for some time, I wept.

I kissed her ears and her cheeks and her eyes and her hands and her feet and her chin. I told her I loved her, and I rocked her little body, even though I knew she couldn't feel it anymore.

What was so beautiful about Abigail was that she was ours. She would have been ours, even if she had died in the womb or on the table in the OR. But she waited, and helped us to claim her as ours, maybe because she knew I needed that time with her.

My heart stopping in the OR didn't stop us from spending that day together. I responded lightning fast to the treatment of the anesthesiologist, and it's no wonder why. Death couldn't hold me back from her. I wanted to spend that day with her.

Our best day ever.

What was so beautiful about Abigail probably can't even be put into measly words. I'm still basking in her glow, through my grief.

Abigail had a certain glory in her body, but I believe she is even more glorious now. Free from pain and tears, she can smile now. Here she was as fragile and beautiful as a flower but in God's presence she glows with all the love she was created with and all the love we, her family, gave her here.

What is so beautiful about Abigail now is the scope of her impact, the lives she has touched for the better, and the way those ripples of love are still flowing outward into the universe. We will not forget her, the lessons God has taught us through her, or her connection to us as an important part of our family. For us she will always be present, in spirit or in memory.

How can we thank God for so much beauty?

Saturday, 29 February 2020

The Day Our Hearts Stop


On Tuesday of this week, my heart stopped, but on Wednesday, it broke. My heart stopped during surgery at the precise moment Abigail was delivered via C-section. She and her dad went into the next room while I was given a shot of epinephrine that brought my heart and breath back. Instead of seeing the moment of her birth, I blacked out and regained consciousness without her or Bill, while a team of ICU nurses and doctors rushed me into the intensive care unit. My first confused questions were about where I was, where Bill was, and where Abigail was.

Was she alive?

They explained to me that she was born alive and breathing, and that she was with her dad. He had been able to join the family in our labor and delivery room. Together with my brother Tim and Bill's dad, Abigail's Grandpa Michael Lantz, Bill gave Abigail a name and a blessing according to our faith tradition. Abigail became a member of the Bill and Katrina Lantz family, a big, loud, loving, and mostly male group. God sent Abigail. She began her work immediately, tenderizing everyone who held her with a feminine spirit unlike anything I have ever felt. She was so soft yet unbelievably strong, fighting for many of the breaths she took in the brief life she was appointed. Her big, beautiful spirit was apparent even in the tiny, burdened body she presented with. I fell in love with her instantly. Abigail was allowed to stay by our side all day in the ICU. Special comfort care was given to her, including feedings through a tube due to her severe cleft palate. She made the sweetest little sounds. Before her birth, there were no guarantees and a lot of guesses. We hadn't known if we would be able to hear her cry at all, but her sweet voice broke my heart and changed it all at once.

Abigail wasn't expected to have eyes, but she had them, sweet little slits that stayed closed the entire time we had her. They had eyelashes and they cried real tears. The privilege of gently wiping away her tears is one I will forever cherish.

Abigail wasn't expected to have ears, but she had them, and we all loved to touch them and sing softly into them. She was sung the words of hymns, love songs, lullabies, and original compositions by five-year-old Daniel.

Abigail wasn't expected to have hair but she had locks of short, dark, curly hair. It was beautiful. In a house full of blondish boys, her hair was just one of the things that made her unique.

Abigail had a sweet little chin like her brothers' chins, and very kissable chubby cheeks, which I stroked softly for hours while watching her breathe.

Abigail's skull ended just above her ears, and her nose and mouth were intermingled due to the amniotic band syndrome that interrupted the head's development. The placenta was sewn into the top of her head. She had challenges because of these things, and the most obvious was that breathing could become very difficult at times. It was hard to watch her struggle, and I was proud of her strength and determination. She lived for one entire day and one entire night.

In her last moments, Abigail's powerful heart slowed gradually to a stop. I held her, skin to skin on my chest until long after her heart stopped. Bill sat beside us, praying and saying goodbye with us. Moments later, Abigail was welcomed into heaven by an even bigger, louder family up there. Breathing was no longer a labor she had to fight through, and the songs she heard then were so much sweeter than even the sweetest lullaby or original composition we could give her here.

On Tuesday, at 8:51am, my heart stopped. But on Wednesay morning at 7:20am, Abigail's heart stopped and mine shattered to expand. I am in more emotional pain than I have ever felt in my comparably long life, but I am also in more love.

Abigail has changed me forever. She has changed all of us in her family, forever.


See God at work. He sent an angel to our family, and we will never be the smaller creatures we used to be. Our hearts are much bigger now. They have room to ache and room to soar, room to love and room to break. Abigail gave us all a super power. Her life and death can make us more tender with each other, so that we never want to hurt each other again. Her powerful example of acceptance in the face of huge trials can make us stronger, so that we believe in our power to persevere through the most difficult challenges. Her quiet but giant spirit and the love that emanated from her tiny being can remind us that God is love and that is so much bigger than any of us alone can fathom. We are eternal beings with eternal purpose. Abigail's life didn't start on Tuesday and it didn't end on Wednesday. Her life stretches before us and after us for eons, and thank heaven for that. Because the world needs more Abigail.

The world needs more tenderness and quiet strength in trial, and love. Above all things, the world needs more love.

I hope I will never forget the way she has touched my heart and shattered it to expand it. I hope my life will bear testament to her sacrifice in coming into that tiny little body with so many struggles. I hope our spirits will continue to be and feel united in that great common cause of godly love. I cannot imagine life without Abigail. I would sooner have to imagine life without joy. But life is joy. I will feel Abigail in the embraces of her dad and her brothers. I will recognize her in every beautiful thing I see or hear. She will be everywhere to me, in a song or a dance, in a flower or a work of art, in a sunrise or a sunset, in a forest or a garden.

She is with God and that love is everywhere.

I cannot forget it while I still feel and breathe it.

I thank God for sending Abigail Réileen Lantz. Hold the gate open for us, baby girl. We are coming, in God's good time.

I have loved you since forever
And now I remember
It aches and it stretches
My heart reaches out to yours
I have known you for forever
And now I remember
It grows and it trembles
My heart knows yours
I have sat with you before
Somewhere far away and long ago
And now I remember
And I will never forget again.
For Abigail Réileen Lantz

Friday, 28 February 2020

Dressing Abigail


Tonight was heavy, but powerful. My husband, my mom, and my sister, Shayna, along with my son, Layne, worked together to dress Abigail Réileen Lantz for the last time. I couldn't imagine anybody else doing it with the love and care we have for her precious little body. She is beautiful in her funeral gown. Tomorrow we will lay her to rest in the Mona cemetery after a funeral at our local chapel. It is surreal for one life to begin and end so quickly. But Abigail's sweet spirit is still with us. I will forever be grateful that she came to our family.

Monday, 24 February 2020

Waiting for Abigail


Waiting for Abigail has been a hard but beautiful time for our family. We have thought more often of eternity and that which is eternal, like love and our relationships and the things we learn here. We have also thought in more urgent and realistic tones about mortality, the briefness of it, and the fact that no time is guaranteed to anyone. We will all die one day, and chances are that it will happen on a day we aren't expecting it.

Today all my pregnancy apps tell me I am 37 weeks pregnant and that my baby will be ready in a few more weeks, but they don't know that she is due tomorrow via C-section. We, her parents and a collection of doctors, have chosen her birth day. But even the doctors do not know for sure when she will die. So we hope. No time is guaranteed to anyone but we hope for time with her.

Time to hold her and smile at her and dance with her and sing to her. I don't know if we will get to feed her. I know there will be time enough to cry over her. We will certainly take pictures of her and memorialize her hands and her feet. We will dress her in beautiful clothes and wrap her in made-with-love blankets. We will introduce her to her five big brothers. She may or may not be breathing when we do.

The only time we are guaranteed to have with Abigail is the time that has already passed with her in my womb. Oh, and I cherish that time! I'm going to miss it so much. Not the aches and pains, but the rolls and punches, and especially the hiccups. Originally the doctor suggested a C-section date a week earlier than this one, at 36 weeks, but at our very next appointment I asked for it to be extended to 37 weeks. I had planned to go all the way to 41 weeks with her if she wanted it, but the risk of my dying was too great for the doctors' liking. Not to mention my husband's. So here we are, a day before the waiting for Abigail must come to an end. 

I'm so grateful for this "extra" week. I know it has made a difference in how we are able to accept whatever outcome we get. I think it has made a difference in how ready Abigail is. She's had hiccups every day, a good indicator of lung/brain cooperative development. I feel there is a good chance she will be able to breathe after all.

Of course, there are no guarantees.

Ready or not, tomorrow morning is the time. This waiting period will end. Her heart has always been so strong, so steady. I have to hope it will keep on beating.

Yesterday I was reading through old journal entries and found one from the day before we discovered Abigail's condition. We were 22 weeks along and I was writing about the difficulty of balancing school with motherhood:

"The fact that I only have a month left of this crazy balancing act is very comforting, though. I know that the tension I feel in seeking this balance is not going to go on consecutively forever. I will get a break next semester. A break to have a baby! And it's a girl! We are all thrilled. We are having a third ultrasound tomorrow, an official anatomy scan to be sure baby is thriving and developing as she should. Her name will be Abigail Réileen Lantz. The middle name is a combination of Renée and Eileen, the first name of my mom and the middle name of Bill's mom. She will be named after both of her grandmothers, which I love! She will likely be our last baby and our only daughter. That's a sad thing to say, but I am getting older and my body can't keep having babies, and the likelihood of getting another girl after this is low, too, seeing as we only have boys so far. Perhaps if we feel so inspired, we can adopt a few girls later on. It's tragic that even in the U.S. sex-selective abortions are done to kill baby girls in the womb and ensure a male baby is born. I will take anybody's unwanted daughters! How can you not want a girl? That's a broken society that can't value a mother in embryo like that.

Deep breath. My mantra with my husband right now is, 'We're going to get through this.'

Whatever we face, we are facing it together. That's the important thing. Nobody knows what tomorrow brings, but growth and adventure are guaranteed."

Growth and adventure are always guaranteed. They are the only thing that is. 

Abigail has already brought so much growth and joy into our lives. Our meeting tomorrow is full of unknowns. But love will be there. Hope will be there. I can't wait to hold her.

Sunday, 23 February 2020

Abigail's Gifts

Not everyone can say that they have baby sister in heaven. I can. And I love her so very much. I gave her two very special gifts. 


Above is a picture of my two stuffed animals. The one on the left is the one from my birth. I once lost it and my mom bought me another one (the one on the right). I eventually found the stuffed animal that I got from my birth. I always wondered what I would do with the second one. Now I know exactly what to do with it. I am going to give it to my sister. I know that even though she can't really play with it, I have something to remind me of her. I will never lose it again the first one again.


Above is a letter that I wrote to Abigail. I am going to keep the pencil somewhere safe. Here is the text if you can't see it:
Abigail,
You mean everything to me. You give me so much hope. I love you. I love you so so much! I know that even though you probably won't live long on this earth, you will live forever in my heart. I can't wait to see you in heaven someday.
Till we meet again,
Sam Lantz
I know that God loves Abby and I and that families can be together forever. These gifts will help me remember Abigail and keep me close to her. No one can take my hope away.

Wednesday, 19 February 2020

Hope, Not What I Thought it Meant

Hands, Open, Candle, Candlelight, Prayer, Pray, Give
Source: https://pixabay.com/photos/hands-open-candle-candlelight-1926414/

I used to hope that my sister would miraculously survive. Now I know that that is not what I should be hoping for. Now I hope that Abby will help our family become spiritually stronger. 


I did a short study on the word "hope".

In 2 Nephi 31:20 it says:
"...press forward, having a perfect brightness of hope..."

That scripture teaches me that if you lose everything, you can still have hope, and if you have hope, you have faith, and if you have faith,  you have God,  if you have God, you have everything you need.

Hope can also be defined as "a feeling of expectation and desire for something certain to happen."

I used a search engine that shows the origin of certain words. I looked up "hope" and this is what I found:
"Some suggest a connection with hop....on the notion of 'leaping in expectation' [Klein]."
"Late old English hopa 'confidence in the future,' especially 'God or Christ as a basis for hope,'..." 
There is also "Old Frisian and Middle Dutch hope, Danish haab, [and] Dutch hoop"


I also realized that "hope" sounded like "hoop" since the formal is eternal and can never be taken from you.

I also like the explanation hop for "leaping in expectation" listed above.

Words that are similar to hope are faith and trust (but not pixiedust!).


Here is a quote that I found:
The people of the Earth Kingdom are proud and strong. They can endure anything, as long as they have hope.
-Prince Zuko; Avatar, The Last Airbender 

Now I see that I was hoping for the wrong thing. I now know what the true meaning is. I know that Abigail and I will see each other again. I hope that she helps my family to be worthy enough for the Savior's return.

Thursday, 13 February 2020

Less Than Two Weeks Left with Our Abigail Réileen

We made it! 35 weeks is considered term. Abigail Réileen is still inside, growing and kicking with those beautiful feet. She is every bit as strong as my other babies. We still have more than a week until the scheduled C-birth. I'm happy for that because we aren't emotionally ready to say goodbye yet.

Our last ultrasound of Abigail at 35 weeks, her right foot from heel to toe

Two days ago we had our last appointment with Dr. Feltovich. She is a doctor of maternal fetal medicine at the hospital where we will be delivering Abigail Réileen. She's the one who diagnosed Abigail with ABS and helped us to plan the right birth for her. Her kindness and understanding have been indispensable over the past few months.



This week I started packing our hospital bags, which I haven't had to do in 13 years! Abigail has a whole bag separate from mine because we have so many special memories we plan to make with her. I'm grateful for that opportunity. There are people from three different organizations coming to help us make memories, just out of the goodness of their hearts: ❤️ Angel Watch, Common Bonds, and Now I Lay Me Down to Sleep.

Less than two weeks remain.

In the last trimester of every pregnancy up to this point, I have always reached a point of physical discomfort that made the upcoming birth a can't-wait-for-it moment. In some cases, I got so impatient, I took matters into my own hands and tried to spur labor with natural remedies. Of course it never worked because babies have their own ideas. Sam was due on Valentine's Day, which is his great Grandma Joyce's birthday, but instead he came a week early when my water spontaneously broke. Corbin, our current youngest, was due on my birthday but decided to stay on the inside for three extra days, much to my chagrin. The only child who came almost on his due date was Daniel, who was born more or less on his due date, the morning after Memorial Day. We sang Amazing Grace and Danny Boy during the night-long labor.

Five natural births, four of which were home births and one of which was unassisted, have taught me that I am much stronger than I ever could have imagined, and also less patient. Waiting on the baby is one of the struggles of the last trimester. It feels very strange this time to be scheduled for a C-section and to know when that day is going to be. It's also different because, rather than hoping to see the end of this pregnancy soon, I wish it would just go on forever. Even feeling braxton hicks contractions makes me nervous. We are still actively making plans for the birth.

I asked the mothers and grandmothers in the anencephaly facebook support group for children's book titles to read to Abigail on the day she is born. Whether she is born alive or sleeping, we want to read to her on her birthday. Someone suggested the book On the Night You Were Born. My first thought when I saw the title was that she will be born at 7:30 in the morning. I know that. The pattern for most of my children's births is that I labored for a day and a night and they were born near dawn, between 3am and 6am. The one exception was Layne, who was born at 1:30pm, but that was just because he didn't want to go to church that Sunday. (I kid, I kid.)

I think the book I'm going to bring is Love You Forever by Robert Munsch. That's the book I've been reading to my children all along, and it wouldn't be right if Abigail missed out on that tradition. I recently learned that the author actually wrote the song for his own babies who died, and then built the story around the song. Isn't that amazing? The grief and love of one father resonates in a song that millions of parents and grandparents around the world have sung to their little ones!



It goes so well with a message I've been getting from heaven lately, about ripples. I think we all think it would be so amazing to change the world. How many songs are written with that very theme? Change the world! We want to feel powerful and meaningful, like our lives mean something. It's one of the hardest things about infant loss--having a child who has rocked your world and yet nobody else even knows he or she existed. That feels wrong because meaning is meant to be shared. Robert Munsch found a way to do that in his book that has forever enshrined the lullaby he sang to his two sweet little babies who didn't stay long enough to utter a single word.

But the concept of ripples operates on the understanding that it doesn't take a big splash to make an impact. Even a tiny ripple, stretched out across the water, can reach distant shores. Somehow we are all impacting one another in this way, with a smile, a phone call, or a thoughtful gift. Even with a disagreement and forgiveness. We are forever touching each other's lives. Even just hearing about one person choosing a higher path can inspire some stranger to do the same.

On Sunday I couldn't go to church. In addition to my body being just plain uncomfortable at 35 weeks and 185 lbs, I'm getting over some congestion in my sinuses. When my husband came home, he handed me a book, lent by some church friends. It was Blaine M. Yorgason's book, One Tattered Angel.


I read it all on Sunday, finishing it by dinner that night. It's about a baby girl that comes to them as they are serving as newborn foster parents. She has hydrocephalus. The story is all about ripples, how each person who meets baby Charity is lifted and changed by her sweet spirit, and even how preparing to receive Charity as a family brought them closer together. I could relate to this on some levels, though their story is fundamentally different from ours because they are adoptive parents and their journey with her began after her birth.

Also, our Abigail likely won't live nearly as long as their Charity did, and that means that all of Abigail's impact is being made in the very short time of her growth in my womb and her birth. Maybe she will continue to have an impact in our lives, if we are attuned to more spiritual things, since she will be with us in spirit. We take it on faith that this is true. It hurts that Abigail won't have much time to make an impact on others, but I have been touched by the few people who have told me that learning about Abigail's situation helped them to see their own children in a new light.

The way ripples work, we will probably not even know all the people she has touched with her short life and with the stories we tell about her. It's another thing we'll have to take on faith. We do know that every child of God has a purpose, and Abigail is a child of God. She has changed me, and I believe our whole family will be forever changed because she came to our family. If the song is true that claims, "The greatest thing you'll ever learn is just to love and be loved in return," then at least Abigail has learned the greatest thing. And any parent who has lost an infant at any stage of development can have the peace of knowing that their babies were loved and that they also learned the greatest thing.

Friday, 7 February 2020

Born the Same Month as Her Brother

Michelangelo, Abstract, Boy, Child, Adult
Source: https://pixabay.com/photos/michelangelo-abstract-boy-child-71282/

My birthday is coming up tomorrow (Feb 8th), but I'm not quite as excited for that as I am for Abigail's birth. I used to think that it was coming in March, which was true until Mom decided to have an early one on the 25 of Feburary. "Is that OK?" she asked me. I was astonished. Why would that not be OK? Then it hit me. My mom was born the same month that her older brother was. My uncle's birthday is a day before my mom's. He is exactly 4 years and a day older than her. Now I saw why my mom asked me that question.

I am both excited and nervous for Abigail's birth. Being nervous can be a good thing sometimes. I once went to a Tween Author Boot Camp. I was very nervous. The last thing I expected to happen was that I would win. Those who didn't win were thrown into a pit (I just made that up but it was still pretty scary). I won first place in my age zone. That experience exceeded my expectations greatly. I'm glad I didn't have pride before I knew the results because I would have had less enthusiasm finding out that I won. I believe that being nervous for Abby's birth is a virtue. I know that she will bring love to our family. I know that she will do other great things for us that we just don't know about yet.

Puzzle, Heart, Love, Two Hearts, Partnership
Source: https://pixabay.com/illustrations/puzzle-heart-love-two-hearts-1721592/

I can tell that my little sister's birth will be a very special one. I can feel her love and I know that she will never really die. I will always have room in my heart for her. Nothing can give me more peace than to know that she will always be here with me. I am proud to say that I have an angel as a sister. Abby is my angel friend now and forever.

BIRTH UPDATE:
Abigail's birth was very special. You could just feel the love reflecting off of Abby and onto everyone else. She is and was a very special baby and we love her just as much as she loves us.

Wednesday, 29 January 2020

Preparing for Abigail's Birth and Death


Our 7-year-old son loves to brush my hair and play with it. Every day this week our 3-year-old has been on my bed playing LEGO pretend with me. I've had lots of good talks with each of our five sons these past few weeks, but only the older three have been warned about the upcoming surgery mommy is going to have on Abigail's birthday.

We are 33 weeks along in the pregnancy, and the C-section is scheduled for February 25th, 2020. This gives us one extra week from what we initially thought we'd have. She will be born at 37 weeks and be considered full term. All the plans we have made for the birth, commemoration, and graveside service are coming together, but it feels surreal. 

Time should stand still in this moment.

Since time is not actually standing still, I find myself resenting its passage. It doesn't make sense that time should go by in the ordinary way, with breakfast and lunch and dinner, with children's waking and sleeping cycles, and with messes to clean up and obligations to keep.

One special thing that seemed to make time hold still for a moment was meeting my brand new nephew on the 18th of January, when he was about eight days old. To smell newborn baby and touch soft, tiny fingers and toes is to come near to heaven. He was still so sleepy and only opened his eyes for a short time during my brief visit, but it was wonderful to sense the special spirit he carries. I am grateful to my sister for sharing those precious moments with me.



I've been reading some beautiful stories about heaven from people who claim to remember it or to have visited it during a health crisis, attack, or accident. When they talk about the incredible variety of colors in fields of flowers, I cry. I know Abigail must love the flowers in heaven. I hope we can give her something like it here on Earth, in her garden and on her grave. I want to create spaces where her spirit will feel welcome to visit us. I don't know what form her post-earth missions will take, and what kind of work she will be doing, but I believe she will always joy in beautiful flowers.

As life goes on, we spend time each day thinking about Abigail and solidifying plans for her birth and death. Last week, Bill put a wood stain on her casket. I love that he has been able to spend time with this project, and put his energy into something for our first daughter.



Yesterday we confirmed the date of the c-section with the hospital and visited a funeral home to make arrangements. Each step we take toward the birth and death of Abigail Reileen feels like a step closer toward finality. Our relationship with her will forever change. Some people felt even closer to their babies after they passed, and I very much hope that will be the case with us.


We learned that in the same town as the funeral home is a floral store owned by a couple who lost a baby last year, and that to honor babies who pass away, they provide a free floral casket spray for the service. I am touched by all the ways people choose to remember their children and to pay it forward to others who are going through the same thing. At an organization called Now I Lay Me Down to Sleep, local photographers offer to come take pictures of the family and the baby to commemorate the lives of these special souls who stay so briefly on earth. There are groups of nurses and grievance counselors who are also bereaved parents wanting to comfort those who stand in need of comfort and to mourn with those who mourn. The services they provide are tender and helpful beyond what they can possibly know. I hope we can find ways to use our own talents and gifts to share with those who are suffering through this and similar griefs.

Bill and I are grateful to everyone who has extended expressions of love and kindness toward us during this long goodbye. It is impossible to tally or rate how much these expressions mean to us now and how much they will continue to mean in the future as we look back on these long days and short weeks. Thank you for loving us, our boys, and Abigail Reileen. May God bless and keep you in his tender embrace always.